Yippee! Hope is sitting up and I'm sooo happy to see it. We increased the glycopyrolate again (which helps with secretions), and this time it helped (for now). It's so fun to have her sitting up in her little black recliner. We've been able to play with her more and hold her more which gets her very excited. She's making a lot of fun 'Hopey' noises and many cute little smiles. When she gets gurgly, we lay her down again, and sometimes we move her to the island so she's more involved.You can see below, we had Hope and Ashley involved in Brodie's after school routine. It's nice for Brodie to read his books to them. Ashley is enjoying her KidKart more. The sheepskin helps a lot because she's so skinny and boney that she gets uncomfortable without it. We also adjusted the headpiece again (it keeps falling down) and she is much happier if she can see what's going on.
The school intake meeting went well and everything is set for Ashley to start school in the fall.
3 comments:
The kids all look great! It's so exciting to think of Ashley going to school. And it's great to see Hope doing better.
Jolene, I enjoy checking in here once in while. Your girls are growing up! Can't believe talk of school has begun already.
Hope looks so much better, love the picture of 3 happy children. Keep up the good work!
We love you all and are missing you a lot. See you in March :)
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