Thursday, March 4, 2010
coughing?
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Ashley and Hope were born with Adenylosuccinate Lyase Deficiency. This metabolic disorder left them with a damaged brain resulting in seizures and profound psychomotor delay. They were not expected to live past infancy. Although they were palliative care, we kept them at home to love and hold. Ashley died on March 18th,2011 (6yrs old) and Hope followed her home on August 14th, 2011 (4yrs old). We now continue our journey as a 'Family of Four'.
2 comments:
Praying lots and see you next week. Love from Dad & Mom
Breaks my heart to hear how sick Hope is. Prayers for all of you. She is so beautiful in that picture.
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