Monday, July 12, 2010
Better?
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Ashley and Hope were born with Adenylosuccinate Lyase Deficiency. This metabolic disorder left them with a damaged brain resulting in seizures and profound psychomotor delay. They were not expected to live past infancy. Although they were palliative care, we kept them at home to love and hold. Ashley died on March 18th,2011 (6yrs old) and Hope followed her home on August 14th, 2011 (4yrs old). We now continue our journey as a 'Family of Four'.
3 comments:
I was so glad when I went on to your blog this morning to see that Hope was better again. I am sure you will get much pleasure from your deck.
Marie McConnell
so happy Hope is feeling better. Glad to see you can enjoy sitting outside with the girls. Ashley looks so cute with the hat!! And Jolene - you look awesome! Love you guys, Madelaine
Enjoyed seeing Hope's birthday photos too.
It's the little things in life we take for granted....sitting on a deck is one of them. Great to hear things are well. Thank you for sharing!
Melanie Friesen
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