We spent the day in Emerg today with Hope. Still puking every 15 minutes with a lot of old blood, and no wet diaper, and not keeping her meds down since Friday morning...not good.
Of course, we got there, and she started tolerating small bits of fluid. Then they gave her a strong antinausea drug (usually used for chemotherapy patients), and she did even better. As soon as she had a wet diaper, we were ready to go home.
Hopefully it's just a bug and she'll keep getting better.
So, we're home with Hope and very glad for it.
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Ashley and Hope were born with Adenylosuccinate Lyase Deficiency. This metabolic disorder left them with a damaged brain resulting in seizures and profound psychomotor delay. They were not expected to live past infancy. Although they were palliative care, we kept them at home to love and hold. Ashley died on March 18th,2011 (6yrs old) and Hope followed her home on August 14th, 2011 (4yrs old). We now continue our journey as a 'Family of Four'.
4 comments:
Glade to hear that you are home and Hope is feeling a bit better.
Hang in there....!
Still prayer journal for you and your family often.
Thank you for your faithful updates even when
things are tough and you are exhausted.
Brenda
Glad to hear things have improved a bit. Still praying!
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