Wednesday, January 13, 2010
A good week...
Subscribe to:
Post Comments (Atom)
Ashley and Hope were born with Adenylosuccinate Lyase Deficiency. This metabolic disorder left them with a damaged brain resulting in seizures and profound psychomotor delay. They were not expected to live past infancy. Although they were palliative care, we kept them at home to love and hold. Ashley died on March 18th,2011 (6yrs old) and Hope followed her home on August 14th, 2011 (4yrs old). We now continue our journey as a 'Family of Four'.
4 comments:
Hi Ashley girl, gramma misses you soooo much :~)
Brodie that's such good news about your eye improvement, was worth all the patching wasn't it?
Hope, i'm so glad the feeding pump is making things more comfortable for you, give you wonderful mommy a smile today :)
Love Gramma
Just a hello from the Wards, glad to see things have improved for Hope, Ashley looks so good in that chair, you continue to be in our thoughts and prayers. You guys are doing a great job.
Love that picture of Ashley, she looks so grown up! I just love her smiles....
Think of you often, love you all. Madelaine
Jolene,
Your dad told me about your blog when I was home at Christmas. I enjoy reading it. Would love to get in contact with you sometime over email. (lutzest4@gmail.com) Tammy (Friesen)
Post a Comment