We're enjoying a nice quiet afternoon. Ashley is napping and Hope is content (not puking). Happy New Year everyone.
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Ashley and Hope were born with Adenylosuccinate Lyase Deficiency. This metabolic disorder left them with a damaged brain resulting in seizures and profound psychomotor delay. They were not expected to live past infancy. Although they were palliative care, we kept them at home to love and hold. Ashley died on March 18th,2011 (6yrs old) and Hope followed her home on August 14th, 2011 (4yrs old). We now continue our journey as a 'Family of Four'.
6 comments:
What a great picture of you five. Happy New Year to you too!
Chantal and Tristan
Nice pic. happy New Year Jolene.
Great picture!
Lovely family photo! Happy New Year!
What a beautiful picture! What a beautiful family! Happy New Year from the Robidouxs.
That is an awesome picture JO!
Happy New Year!
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