Thursday, February 4, 2010
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Ashley and Hope were born with Adenylosuccinate Lyase Deficiency. This metabolic disorder left them with a damaged brain resulting in seizures and profound psychomotor delay. They were not expected to live past infancy. Although they were palliative care, we kept them at home to love and hold. Ashley died on March 18th,2011 (6yrs old) and Hope followed her home on August 14th, 2011 (4yrs old). We now continue our journey as a 'Family of Four'.
2 comments:
Wow, can`t believe the time has flown, just to hear you talk about Ashley going to school. Will be thinking of you today. You two have done so much for her. Your Calgary trip looked awesome. Glad you were able to relax. Love you
Wonderful, Ashley can go to school. That's great - and she will do so well. So happy things are going a little better with Hope.
Love you all, Madelaine
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