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Ashley and Hope were born with Adenylosuccinate Lyase Deficiency. This metabolic disorder left them with a damaged brain resulting in seizures and profound psychomotor delay. They were not expected to live past infancy. Although they were palliative care, we kept them at home to love and hold. Ashley died on March 18th,2011 (6yrs old) and Hope followed her home on August 14th, 2011 (4yrs old). We now continue our journey as a 'Family of Four'.
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8 comments:
Great slideshow Jolene! Thanks for putting that up. Happy Birthday, Ashley! We love you so much!!
Wow- what a beautiful girl and family. You are blessed and are a blessing to others. Happy Birthday Ashley!
Your slide show was beautiful.You're attitude and acceptance of life the way God planned it, is amazing .You have been such a testimony to us over the years, and keeping you in our prayers has been a privilege.You have such a beautiful family.
Happy Birthday Ashley and belated Happy Birthday to Brodie. Love Johnny and Helen
Jolene, wonderful video. Loved it. Such beautiful children you have. I keep meaning to call and wish a happy birthday to you. (I know I'm really late =). Maybe I will try this weekend. Know that I love you and think of you often.
Jolene, I love love love it!
Great slideshow Jolene, it means so much to us to see the updates. Have a great day.
Happy birthday Ashley! I knew it was in February, just didn't know the day, now I know! Jolene, Ashley is thriving on your love and care. Thanks for sharing.
Wow - what a special blessing Ashley is to you. I love how you worded all of it and recognize again how God has a special plan for her. Love you all, miss you, Madelaine
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