Nothing too exciting here. Ashley is back to her uncomfortable self, usually crying more often than not. We're still trying different positions/cuddles and trying to adjust meds to help her find comfort. Mostly I think she needs to sleep and is having trouble with that because of the seizures. The next med we are going to try is called Clonidine. Apparently it works very well with pediatric patients with irritability and pain and general discomfort.
Hope is great. She hasn't had a vomitting episode since March and is still giving us little half smiles, and appears to look at us when we talk to her. Brodie is loving school and enjoying soccer in the evenings. We're enjoying Wed evening slow-pitch. It's a good start to the summer.
Hope is great. She hasn't had a vomitting episode since March and is still giving us little half smiles, and appears to look at us when we talk to her. Brodie is loving school and enjoying soccer in the evenings. We're enjoying Wed evening slow-pitch. It's a good start to the summer.
1 comment:
oh poor Ash. She looks so sad. Hold her close and give her kisses from me. I hope the new meds work for her.
Deanna
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