Hope has stopped vomitting and has kept her meds down today. We've started dripping in some water slowly and she's kept that down too. Her breathing is a little labored and she has a fever on and off, so hopefully she starts coughing a little stronger to clear her lungs and prevent pneumonia. The only other thing to wait for is a wet diaper, she needs to start peeing again.
I'm always tentative at this point to say that she's getting better, but somehow she always does. By tommorrow we should have a better idea of where she's at.
Ashley is 'calling out' to be held, so I better scoot.
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Ashley and Hope were born with Adenylosuccinate Lyase Deficiency. This metabolic disorder left them with a damaged brain resulting in seizures and profound psychomotor delay. They were not expected to live past infancy. Although they were palliative care, we kept them at home to love and hold. Ashley died on March 18th,2011 (6yrs old) and Hope followed her home on August 14th, 2011 (4yrs old). We now continue our journey as a 'Family of Four'.
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