Monday, November 15, 2010
The same...
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Everything is about the same. Mira is doing great and Brodie is enjoying her as much as we are. Ashley has good moments and a lot of crying moments, so we're still increasing meds, hoping to find the right balance. She's definitely doing better, because we have more good moments, and more quiet cuddles.
Ashley and Hope were born with Adenylosuccinate Lyase Deficiency. This metabolic disorder left them with a damaged brain resulting in seizures and profound psychomotor delay. They were not expected to live past infancy. Although they were palliative care, we kept them at home to love and hold. Ashley died on March 18th,2011 (6yrs old) and Hope followed her home on August 14th, 2011 (4yrs old). We now continue our journey as a 'Family of Four'.
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