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Ashley and Hope were born with Adenylosuccinate Lyase Deficiency. This metabolic disorder left them with a damaged brain resulting in seizures and profound psychomotor delay. They were not expected to live past infancy. Although they were palliative care, we kept them at home to love and hold. Ashley died on March 18th,2011 (6yrs old) and Hope followed her home on August 14th, 2011 (4yrs old). We now continue our journey as a 'Family of Four'.
11 comments:
beautiful jolene. thanks for sharing
Cousin Natalie
I thought of Ashley often today. What a beautiful tribute, Jolene.
Deanna
Jo,
That was absolutely beautiful. I keep thinking that Ashley's braids say so much about you...
Love,
Ange
thanks for sharing, what a beautiful way to remember Ashley, the words in the song bring tears to my eyes.
Brenda Klassen
that is beautiful Jolene.
Derek
So beautiful Jolene! ((((HUGS))))
love to all of you. The song you chose was very special. Ida
the song you chose is very special. Love to you ,Idanclatl
the song you chose is very special. Love to you ,Ida
the song you chose is so special .Love you Ida
tears are running down my cheeks. A beautiful tribute to an amazing angel and incredible journey.
xoxo
Karin
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