So we decided the best thing to do was make brownies!
Friday, August 28, 2009
Hope is sick
So we decided the best thing to do was make brownies!
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Ashley and Hope were born with Adenylosuccinate Lyase Deficiency. This metabolic disorder left them with a damaged brain resulting in seizures and profound psychomotor delay. They were not expected to live past infancy. Although they were palliative care, we kept them at home to love and hold. Ashley died on March 18th,2011 (6yrs old) and Hope followed her home on August 14th, 2011 (4yrs old). We now continue our journey as a 'Family of Four'.
6 comments:
Praying for Hope today.
Hi Jolene - our hearts are heavy with the news of Hope being so sick. We will be praying today. Wish I could be there to give you a hug. But God is there all the time, when others can't. He is holding you!! Love you, Madelaine
I was wondering why the blog wasn't being updated. I go on almost everyday to see what's going on in your busy world. Give hugs and cheek smooches to Hopey please. Poor little darling. I hope she's going to be ok and your worries ease. Nice photos of Chicago. Next time you go, let me know and fly in to meet you!
Deanna
Our thoughts are with all of you for the speedy recovery of beautiful Hope. The Forsters
Hi Jolene...Sorry to hear that Hope is sick. It is never fun. However, I like your attitude about the brownies...chocolate is better than worrying. I'll be praying for you guys.
Just reading about Hope being sick. That must've been a little scary. Keeping you in our prayers. Hope you enjoyed the brownies. Mmm.
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