Thursday, August 20, 2009
Weekend
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Ashley and Hope were born with Adenylosuccinate Lyase Deficiency. This metabolic disorder left them with a damaged brain resulting in seizures and profound psychomotor delay. They were not expected to live past infancy. Although they were palliative care, we kept them at home to love and hold. Ashley died on March 18th,2011 (6yrs old) and Hope followed her home on August 14th, 2011 (4yrs old). We now continue our journey as a 'Family of Four'.
3 comments:
Tristan has the same hoodie as Ashley. I love the Joe clothes. Have a good week.
Chantal and Tristan
Jolene I'll try and leave a comment and if it doesn't work then pffff!
I think Ashley and Hope look so grown up in the pic (especially Ashley!). I hope they enjoyed their weekend as did you Alex and Brodie!
Yeah for comments! I think they look pretty grown up too.
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