Monday, June 8, 2009

Cuddle time...




Brodie reminded me that he wanted cuddle time with the girls today, so we made it happen. He even read Ashley a story. Hope's drooling has moderately improved with the glycopyrolate, but increases dramatically with her clusters of seizures which last anywhere from 5 minutes to an hour, and occur about 6 - 10 times per day. She's still pretty 'out of it', but we often see her 'thinking of smiling', as you see in the photo above.
Tonight we have respite booked, so both Alex and I will be able to enjoy Brodie's soccer game (hopefully not in the rain!).

1 comment:

AYnsley said...

wow wow wow do Brodie and Ashley ever look a like in that picture. I never noticed before!!!! Cute x 1000.