Here is Hope, a year ago. I thought everyone could use this little bright spot to lighten the day. Amazing what a smile can do for us!
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Ashley and Hope were born with Adenylosuccinate Lyase Deficiency. This metabolic disorder left them with a damaged brain resulting in seizures and profound psychomotor delay. They were not expected to live past infancy. Although they were palliative care, we kept them at home to love and hold. Ashley died on March 18th,2011 (6yrs old) and Hope followed her home on August 14th, 2011 (4yrs old). We now continue our journey as a 'Family of Four'.
1 comment:
hi i don't eglish ok i
your girl is a beautiful!!
gad bles you my baby 3 years hold drink phenobarbital to sorry for my leeters
i hope you understand
a well later ride back!!:)
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