Friday, October 9, 2009
Happy Thanksgiving
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Ashley and Hope were born with Adenylosuccinate Lyase Deficiency. This metabolic disorder left them with a damaged brain resulting in seizures and profound psychomotor delay. They were not expected to live past infancy. Although they were palliative care, we kept them at home to love and hold. Ashley died on March 18th,2011 (6yrs old) and Hope followed her home on August 14th, 2011 (4yrs old). We now continue our journey as a 'Family of Four'.
3 comments:
Hope does look cute sitting in that chair! Sounds like the night shifts are taking a round out of you,Jolene, although I'm sure you enjoy getting out.
Happy Thanksgiving to you and all the family in Killarney!
Happy Thanksgiving Jolene & Alex & family.
Ken & Brenda
Happy Thanksgiving to you! I plan to eat pumpkin pie for dinner tonight to celebrate.
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