Hope hasn't thrown up since we started the Ganisitron (med for nausea and vomitting). I'm very relieved.
Merry Christmas everyone!
Ashley and Hope were born with Adenylosuccinate Lyase Deficiency. This metabolic disorder left them with a damaged brain resulting in seizures and profound psychomotor delay. They were not expected to live past infancy. Although they were palliative care, we kept them at home to love and hold. Ashley died on March 18th,2011 (6yrs old) and Hope followed her home on August 14th, 2011 (4yrs old). We now continue our journey as a 'Family of Four'.
3 comments:
This is such a sweet picture of the two of them. I just love the look of "that's my little sis" of Brodie's face.
I haven't commented much but we read your blog regularly and pray for your family when you have prayer requests.
Have a wonderful Christmas!
Love from Faith Desharnais
Merry Christmas to you too! We survived at work without you and Christmas coincided with Dr. B.'s "food day" fridays.
Helen
Hi Allens!
Glad to hear that the meds have helped Hope. Your girls are beautiful! Is Brody having fun in the snow??
Merry Christmas friends!
Ange
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