Poor Hope! She hardly gets a rest from the seizures. It's so sad to see her looking like this most of the day, mostly limp, with her head slightly tilted and drooling a bit. When her eyes are fixed to the right, she's seizing (as we discovered during the 5 hour EEG). She does this most of the day. Although she still manages to come out of it, to drink her bottles and tell us she's hungry. We see the shadow of a smile every now and then. I miss her real smiles and coo's, but enjoy the snuggles.
1 comment:
Hi Jolene - praying for all of you. It must be so hard to see Hope having these seizures. We think of you often, and love you guys.
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