Hope has been sleeping most of the afternoon. The brief moments of eye opening have usually been with vomitting, but she's been keeping some fluid down for a few hours. We've been giving her 10ml of pedialyte every ten minutes in an effort to prevent dehydration.
It appears that her left side is completely paralyzed again. She has absolutely no movement of the left arm or leg, and the left side of her face doesn't move. This can be a temporary after-effect of a prolonged seizure, so we hope that it will go away again.
We're hoping that we can keep her comfortable at home this weekend. If she wakes up and is seizing again (which is likely) then we'll give Midazolam instead of Ativan, to try and stop the seizure. The pharmacy is delivering it tonight. They tried to tell me that Tuesday would be the soonest, but I convinced them that it was needed immediately. So hopefully, it gets here soon.
She's all cozy here in Grandma Lil's blanket. It came with us to the hospital and was very nice to keep her warm in.
6 comments:
Jolene, even though I haven't commented before, I've been keeping up with what you've posted and been keeping you, Alex and your family in my thoughts and prayers many times during the days. When I had to sing the Ave Maria last week, I sang it for Hope. Just know how much we all care. Love, Sandy
Jolene,
Thank you for keeping us updated, no matter how heartbreaking the news. Your blog is the last thing I check before turning the computer off for the night. I hope you all can soon get some rest.
Thinking of you,
Helen
Jolene and Alex, wow so much is going on, am praying so much for strenth for you both. My prayers go out to you and your family. Thanks so much for the updates.
Hello Jolene and Alex. Thank you for posting the updates and we look at it several times per day. Even though we are far away, please know that thoughts and hopes all always with you through what must be a very emotional and physically exhaustive time.
Take care and stay strong.
Hi Jo and Alex,
Just wanted to say that you will be in our thoughts and prayers this weekend.
Love,
Ange
heyhey all you need is a google account!!!! Jocelyne
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