The day started out okay, with some nice smiles and some playtime with Brodie. The evenings are always bad, but we're getting used to that. The seizures are way to frequent for my liking (about 5 - 20 per hour). More decisions, more meds, everything is so uncertain.
This evening Ashley decided to bless us with a massive blow-out. She had one of her 'big seizures' and let loose her bowels. You won't want this visual, but you can stop reading if you must. There was gushy, green poo dripping out the sides of her nice new chair, creating little plops on the floor!!! As we cleaned up, I attempted some humour and laughed that the perfect top off would be for Hope to start puking in her chair. And guess what? She did just that. Then cried for the rest of the evening! I probably shouldn't get quite this detailed on a public blog, but oh well. It's just a little glimpse into our lives. Hope everyone else had a great day too!
4 comments:
I remember that happening one time when I was there, the green geyser stuff. I think you had a housefull of people, yet.
And there you are in this photo, still smiling, Jolene. You're amazing!!
I might have been smiling in the morning but by 8pm, I'm pretty sure there weren't too many smiles left.
Are you wishing you were at work with the unit assistants, housekeepers, pharmacists, doctor on call, and paid breaks?!
Paid breaks? How about any break. I shouldn't say that, I do have a good amount of help around here. Sometimes I just want an empty house. That would be a break.
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