During one of our outside evenings, Mira was inching herself back, as she tried to figure out how to crawl...
Then she decided she'd had enough...
That's just how I feel too somedays!
Ashley and Hope were born with Adenylosuccinate Lyase Deficiency. This metabolic disorder left them with a damaged brain resulting in seizures and profound psychomotor delay. They were not expected to live past infancy. Although they were palliative care, we kept them at home to love and hold. Ashley died on March 18th,2011 (6yrs old) and Hope followed her home on August 14th, 2011 (4yrs old). We now continue our journey as a 'Family of Four'.
2 comments:
Too cute Mira. Pretty soon she'll be crawling and trying to steal Hope's shade on the blanket!!
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