This is one of the few smiles we were blessed with today. Hope is still having a lot of trouble with seizures (she required more rescue meds tonight), coughing and vomitting. We're hoping she starts doing better soon.
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Ashley and Hope were born with Adenylosuccinate Lyase Deficiency. This metabolic disorder left them with a damaged brain resulting in seizures and profound psychomotor delay. They were not expected to live past infancy. Although they were palliative care, we kept them at home to love and hold. Ashley died on March 18th,2011 (6yrs old) and Hope followed her home on August 14th, 2011 (4yrs old). We now continue our journey as a 'Family of Four'.
Common Interests...
Blog Archive
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2008
(90)
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September
(25)
- Happy Day
- Smiley Hope
- In the Past with Ashley
- More of the same
- Still more seizues
- Few Smiles
- Not so good.
- More Seizures
- No fun!
- Ashley smiles
- Sunday, Sept. 21
- New Wheels for Ashley
- Jump on Daddy!
- 2 hours to drink a bottle!
- Brodie on the Bus
- Teething
- New Day
- More Seizures
- Friday, Sept. 12th
- First Day Home
- Home
- Smiles
- Wed. Sept. 10, 2008
- Ambulance ride on Friday
- Hope's first hospital admission
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September
(25)
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