We were able to bring Hope home today, not because she's better but because there is not a lot anyone can do for her. Trying to keep Hope's best interest in mind, we decided she would be happier at home with no tubes, no poking and no beeping monitors. She may die, or she may not (in Brodie's words), but at least we'll all be together. We decided against monitors and oxygen at home because that would change the focus. It's more important to us to keep our home full of peace and allow Hope to go when it's her time. Her condition is not one that can be fixed and it will continue to progress, so we'll keep her comfortable and happy.
Thank you so much to everyone who has called, emailed and left comments. It doesn't matter if you find the 'right' words, it just means a lot to know that people care. We'll still post updates, but probably not as frequently. Visitors are welcome, we won't be leaving home for a while.
4 comments:
My heart is touched by your comments, Jolene. I remember being at your house when it seemed as though Ashley wouldn't be there long. But God had a different plan. Not we will wait to see what God will do. It's good we don't know, we just have to trust. We just continue to pray for all of you, and know God has a plan. Love you all.
oh, and I just love the expression on Brodie's face. It's like he's saying - Cheer up Folks!!! It's gonna be alright!!
We love you guys!!
Oy Jolene, you guys are being so strong. We are also praying for you and our hearts are breaking. We'll keep checking in for updates. Take care, love Katie & fam.
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