More of the same

Hope did very well taking her bottle today, and didn't throw up even. I thought she was doing so well, that I removed the NG tube. Then she threw up all her formula and meds for the evening! "Fooled you, Mom". The seizures continue, and in the evenings the seizure activity outweighs the normal activity. Rather depressing, I prefer smiles and happy coo's (which we haven't heard in a long time). I'm having flashbacks to Ashley, when she was all limp and unresponsive for days at a time because of the seizures/meds and the general deteriorating state. I'ld rather not see that happen again.