Both girls have a cold. Hope is especially snuffly and rattly, with multiple seizures and a strong cough. Lots of cuddles today. Ashley is still smiling a lot and has a very strong cough.
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Ashley and Hope were born with Adenylosuccinate Lyase Deficiency. This metabolic disorder left them with a damaged brain resulting in seizures and profound psychomotor delay. They were not expected to live past infancy. Although they were palliative care, we kept them at home to love and hold. Ashley died on March 18th,2011 (6yrs old) and Hope followed her home on August 14th, 2011 (4yrs old). We now continue our journey as a 'Family of Four'.
Common Interests...
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2008
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December
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- Fun in the snow
- Two sick girls
- Not too exciting.
- Make a Smilebox slideshow
- Neufeld Christmas Gathering today
- Christmas fun begins.
- A game of catch.
- Christmas baking...
- Pretty good...
- nap?
- A day out...
- Winter Concert
- Messy evening...
- fun with Grandpa...
- Better...
- Home!
- One more night
- Surgery Day
- Better Day
- Bad Day
- Bad evenings...Good Mornings.
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December
(21)
3 comments:
Being sick with colds is yucky...especially for kids. I love the cute Queen Bee bib! Enjoy yoru day, and i hope the snufflies leave your house quickly!
grandma falk says; i love your pictures and keeping in touch by the blog,guess i will have to find another place to see it when joanie goes south.
mom & dad say; you are an awesome mom jolene, and so talented at the computer! keep coming with those pictures,updates,& smileboxes! love you lots!!!
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