Hope is doing better, she only threw up once yesterday. She's coughing a lot today, but it's probably related to secretions. Ashley never got sick, and as you can see...she still gives us wonderful smiles.
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Ashley and Hope were born with Adenylosuccinate Lyase Deficiency. This metabolic disorder left them with a damaged brain resulting in seizures and profound psychomotor delay. They were not expected to live past infancy. Although they were palliative care, we kept them at home to love and hold. Ashley died on March 18th,2011 (6yrs old) and Hope followed her home on August 14th, 2011 (4yrs old). We now continue our journey as a 'Family of Four'.
3 comments:
Great smile! Beautiful.
Oh my...that is an awesome picture of Ashley...that smile is precious. Love it!
These are amazing pictures of the kids Jolene, you definately do not need to go to a studio! Adorable!
Kyla
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