Hope is doing better, we're just waiting for some results to see if she has a UTI. I'm healthy again and I'm on my way to work tonight for a night shift. Have a great day everyone!
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Ashley and Hope were born with Adenylosuccinate Lyase Deficiency. This metabolic disorder left them with a damaged brain resulting in seizures and profound psychomotor delay. They were not expected to live past infancy. Although they were palliative care, we kept them at home to love and hold. Ashley died on March 18th,2011 (6yrs old) and Hope followed her home on August 14th, 2011 (4yrs old). We now continue our journey as a 'Family of Four'.
3 comments:
Ooooh, she looks so cute sitting there!!!
You did such a great job of getting the girls pictures. They look so beautiful. In Hope's picture, you can hardly even see the respite worker's arm. =) So glad you both are feeling better.
i love the pictures! can hardly wait to cuddle them
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