Saturday, November 14, 2009
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Ashley and Hope were born with Adenylosuccinate Lyase Deficiency. This metabolic disorder left them with a damaged brain resulting in seizures and profound psychomotor delay. They were not expected to live past infancy. Although they were palliative care, we kept them at home to love and hold. Ashley died on March 18th,2011 (6yrs old) and Hope followed her home on August 14th, 2011 (4yrs old). We now continue our journey as a 'Family of Four'.
3 comments:
I'm glad to hear that Hope is feeling a bit better. Prayers for strength for both you and Alex as you care for all your beautiful children.
glad to hear it. lots of love from mom & dad.
Hi Jo.
What is with this fall?!? My kids seem to go from one fever to the next. Praying that everyone feels better soon & that Hopey can keep in her meds.
Ange
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