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Ashley and Hope were born with Adenylosuccinate Lyase Deficiency. This metabolic disorder left them with a damaged brain resulting in seizures and profound psychomotor delay. They were not expected to live past infancy. Although they were palliative care, we kept them at home to love and hold. Ashley died on March 18th,2011 (6yrs old) and Hope followed her home on August 14th, 2011 (4yrs old). We now continue our journey as a 'Family of Four'.
Common Interests...
Blog Archive
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2008
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December
(21)
- Fun in the snow
- Two sick girls
- Not too exciting.
- Make a Smilebox slideshow
- Neufeld Christmas Gathering today
- Christmas fun begins.
- A game of catch.
- Christmas baking...
- Pretty good...
- nap?
- A day out...
- Winter Concert
- Messy evening...
- fun with Grandpa...
- Better...
- Home!
- One more night
- Surgery Day
- Better Day
- Bad Day
- Bad evenings...Good Mornings.
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December
(21)
8 comments:
Love all the photos in the smilebox. The girls are so cute and everyone is all smiles for Christmas. Hope you have had time to VEG out and just enjoy being a family!!
Hello Jolene. Your computer skills are amazing! We've had our usual all-day food fest at work. I finally got to taste Deb's famous trifle because she made a batch without it's "kick"! Merry Christmas and wishing you all a good night's sleep!
Helen
Thanks for sharing these photos. I'll echo Helen's comments, "Your computer skills are amazing."
With our prayers
Brenda & Ken
I have to admit that the 'Smilebox' program makes these little slideshows pretty easy to create. I love hearing from all of you. Thank you.
That Christmas greeting was so awesome--Thanks for sharing all the smiles and updates.We never miss a day lookig for your news, and we rejoice with you fir the good days and cry for you in the bad days.Our prayers are always with you.You have been such an inspiration to so many people--so just keep the Faith.Wishing you a Happier 2009.Johnny and Helen
Merry Christmas Jolene. Beautiful card- we loved the pictures. I need your new address so i can send you our Christmas card. Hope you had a wonderful Christmas together.
Thinking of you,
Dana
Awesome video!!
HAPPY NEW YEAR and Best of Health and Happiness
You guys are truly AMAZING!!Loved the video (and your new house)-may you have a good new year and many peaceful days and nights!!.
Julie
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