The girls are back home after their fun-time away with our respite friends. Ashley came in the door with smiles and the cutest pigtails, all braided with matching hair 'bobs'. Hope came in with seizures and a look on her face that said, 'just wait for it...'. Hope actually settled quickly this evening and went to sleep, but reports of frequent crying did come home with her.
Brodie quickly updated the girls on the events over the weekend, and helped them by injecting "ooohs and ahhhs" in his 'little girl' voice, at all the right moments.
It was great to have a break. Now that Hope is back home, it looks like we're going to try some Gabapentin, as suggested by Palliative Care and Neurology. It's a medication for 'neurological pain', and it did help Ashley a LOT. We'll see what it does for Hope.
4 comments:
Hopefully this new medication can improve Hope's pain and crying. Looks like Brodie's feeling better! Love you Jolene - always praying.
I continue to pray for you and your family. May God strengthen you and surround you each day.
We are praying for you and your family.
Love,
Nicole and family
Yeah, let's hope it works!
Jules
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