Hope is sick today. She's been vomitting since 3pm, with quite a few seizures and some horrible stomach heaving. She's pretty wiped out right now, hopefully she gets a good rest.
skip to main |
skip to sidebar
Ashley and Hope were born with Adenylosuccinate Lyase Deficiency. This metabolic disorder left them with a damaged brain resulting in seizures and profound psychomotor delay. They were not expected to live past infancy. Although they were palliative care, we kept them at home to love and hold. Ashley died on March 18th,2011 (6yrs old) and Hope followed her home on August 14th, 2011 (4yrs old). We now continue our journey as a 'Family of Four'.
5 comments:
Jolene~
I am so sorry Hope is sick. We are sending her hugs and kisses.
Dana
Sorry that Hope is sick. We were hoping that for your birthday tomorrow your girls would give you lots of smiles and make your day special.Happy Birthday, tomorrow, Jolene Sending love and prayers.
Johnny and Helen Hiebert
Hi Jolene - praying for Hope - that she recovers quickly. AND HAPPY BIRTHDAY, Jolene. I remember when you were born, and how happy we all were!! So many blessings, and joy for your birthday. Love you so much. Wish I could just pop in.....Madelaine
Thank you so much for the Birthday wishes and prayers for Hope.
Hi Alex&Jolene,Our prayers are for a speedy recovery for Hope and a very happy birthday for you Jolene. Missing you, Mom&Dad N.
Post a Comment