Sitting tall...

Here's Ashley sitting tall at the table with the rest of us in the morning. She is so full of smiles, what a joy.

Finally it warmed up a bit. Alex, Brodie and I enjoyed the warm weather by going out into the hot-tub. Brodie had fun with all his bath toys. Next time we'll bring Ashley in and see how she likes it.

Hope is still crying. She starts around 1:30pm with clusters of seizures which leave her sobbing, then more spasms which get her crying, and then the intensity increases until she is full out crying and completely inconsolable. The last couple days, she has calmed down by 6pm, but doesn't fall asleep till about 8pm. At least she's still getting sleep at night. Although we're not too sure how much sleep, because we keep finding her in the midst of full body tremors, twitches and jerks when we go to get her up in the morning.