Just a nice lazy moment after school. Just picture me sitting beside Ashley and that's what you would see if you were here after Brodie gets home from school.
Hope had another good day yesterday, with no crying. It has been decided that we will leave her Gabapentin as is, and not worry about poking her for bloodwork right now. This morning we saw Occupational Therapy and Physio Therapy, which is always an enjoyable appointment for us. They told us how good the girls are doing. It looks like Ashley has grown so much that we are going to have to get her stander 'refitted' soon (we've adjusted here as much as we can to accomodate her height increase). The plan for Hope is a neck collar, so that she can breath when she's in her feeding chair or car seat. Right now she doesn't have enough strength to hold her head up (or protect her airway), and that's why she starts 'foaming' and gasping whenever she's in these seats. We hardly ever take her anywhere, and we've stopped using the feeding chair because she looked so uncomfortable. So a collar will give her neck the support it needs to hold her head off her shoulders and keep her airway open...Bonus!!!
2 comments:
so happy things are improving for Hopey! And glad you can have access to all kinds of things that your girls need. That's awesome. Ashley looks so adorable in that photo where she's napping. Too cute! It's like she needs a sign saying: Please don't wake me! Love you, Madelaine
Brodie looks very much like his Great Grandpa Neufeld.... reading his paper after a hard days work. Very handsome! Love, Natalie
Post a Comment