Happy St. Patricks Day!
Enjoy some smiles and pass them on...
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Ashley and Hope were born with Adenylosuccinate Lyase Deficiency. This metabolic disorder left them with a damaged brain resulting in seizures and profound psychomotor delay. They were not expected to live past infancy. Although they were palliative care, we kept them at home to love and hold. Ashley died on March 18th,2011 (6yrs old) and Hope followed her home on August 14th, 2011 (4yrs old). We now continue our journey as a 'Family of Four'.
1 comment:
Haha Jolene!!! Thats super cute. Hope the appointment tomorrow works out for you guys! Hope your having a good day.
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