We had some nice moments outside on the front porch yesterday. It's so nice to see warmer weather and sunshine. Ashley is still moaning a lot, but we're working on that.
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Ashley and Hope were born with Adenylosuccinate Lyase Deficiency. This metabolic disorder left them with a damaged brain resulting in seizures and profound psychomotor delay. They were not expected to live past infancy. Although they were palliative care, we kept them at home to love and hold. Ashley died on March 18th,2011 (6yrs old) and Hope followed her home on August 14th, 2011 (4yrs old). We now continue our journey as a 'Family of Four'.
2 comments:
yeh for Hope! pulled thru again :)
Nice picture of Alex, Brodie & Ashley enjoying the nice weather.
See you tues.
Love, Mom
Sorry tohear you have had a rough few days. I have been away and was only able to access your blog once. When I got home, I red your last weeks entries. My heart goes out to you, I admire you and Alex so much with how you cope with everything that goes on. Thinking of you and keeping you in My prayers.
Marie McConnell
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