Well, it's a good thing I got my cuddles with Hope yesterday and this morning, because she just started throwing up again. Poor thing. Ashley is sleeping finally, after moaning all morning, and then having a 20minute seizure, she finally fell asleep.
So it goes...the ups and downs of life.
skip to main |
skip to sidebar
Ashley and Hope were born with Adenylosuccinate Lyase Deficiency. This metabolic disorder left them with a damaged brain resulting in seizures and profound psychomotor delay. They were not expected to live past infancy. Although they were palliative care, we kept them at home to love and hold. Ashley died on March 18th,2011 (6yrs old) and Hope followed her home on August 14th, 2011 (4yrs old). We now continue our journey as a 'Family of Four'.
No comments:
Post a Comment