Hope is doing better, and it's so nice to be able to cuddle her and not worry about vomitt! She's starting to look uncomfortable at times, and it appears that she's starting to stiffen up and posture like Ashley does, even moaning the way Ashley does. This is somewhat disturbing for us. We are constantly trying to keep Ashley comfortable, so I can't imagine both girls crying and moaning all the time. Hopefully we can find the right balance of meds/cuddles/excercise that can help with comfort. The Palliative Care team has been a great help in managing the meds and helping us problem solve.Brodie is having a great week. Playdates every day. Spring break is so much fun with him home. The girls love hearing the sounds of the kids.
4 comments:
Nice to hear Hope is doing better. The pic of both of you looks awesome. Glad to hear Brodie is enjoying the holidays. Love you all, Happy Easter!! Madelaine
HI Jo,
Happy spring break! I am so glad to hear that things are better in your home with HOpe. I don't know how you do it. I will pray that Easter goes well for your household. Have a wonderful day.
Ange
Happy Easter to both of you, so glad to hear Hope is better. Have been praying for you as you juggle work, unhealthy kids, preparing for Easter,just everyday living. Hope its a happy one for you and your family.
Glad Hope is doing better, Jolene. Love you - Happy Easter.
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