Another day to hold her.
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Ashley and Hope were born with Adenylosuccinate Lyase Deficiency. This metabolic disorder left them with a damaged brain resulting in seizures and profound psychomotor delay. They were not expected to live past infancy. Although they were palliative care, we kept them at home to love and hold. Ashley died on March 18th,2011 (6yrs old) and Hope followed her home on August 14th, 2011 (4yrs old). We now continue our journey as a 'Family of Four'.
4 comments:
thinking of you so much. Didn't sleep very well last night, so it gave me lots of time to pray for all of you, and especially Ashley. Love the photo of you and Ashley!
Beautiful Picture Jolene, my thoughts and prayers are with you and your family, love you Aunt Anita
Prayers of peace to you and your family. I love the picture of you and Ashley...it is beautiful. I picture of love!
Praying for you, that God will give peace and comfort. Love you.
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