Much better!

Ashley is definitely better!  Are you surprised?  Because I sure am.  This is certainly a wake up call for us.  It's time to get some funeral planning done.  When Ashley was six months old we started planning her funeral, and then she stabilized around 12 months old.  We haven't reviewed those plans since.  The Palliative Care team told us that they see this happen.  This little crisis could be called a 'dip' and she might have many more, or she might succomb during the next one, but it isn't unusual for a child to deteriorate and look gravely ill, and then bounce back.  We'll call it a 'practice run' because now that we know what it looks like, we can make a few preparations.  Not that it will be easy to support her through some more 'dips', but it helps to have an idea of what to expect.

The support we recieved through phone calls, visitors, comments and emails, was incredibly appreciated.  We didn't feel alone, and yet we had many peaceful moments with Ashley in between visitors/phone calls.  It was a good balance.

Ashley is a different girl now.  Since her illness, she is completely relaxed and peaceful.  She doesn't moan or cry.  She never postures or twists her body.  She has had no seizures!  She just lays there with her eyes moving around when she hears a noise, and sometimes she has a tiny little smile.  We have NEVER seen Ashley like this...hope it continues...

Ashley at 6 months old.