All is well here. Brodie is enjoying school and we've finally set a date for his birthday party which was post-poned due to Ashley's illness, Hope's illness, Ashley's funeral, Hope's continued deterioration ect. It's been a tough run, and now it's time to attempt to climb out of the pit again (ie. pretend this is our new normal and hope it lasts). So, I set a date for Brodie's birthday party (a small party) and Alex laughed at me. "Jolene, you know what happens when you make plans...". Yes, yes, yes....I know, but Brodie deserves a party and I finally have the energy to make it happen. He's been a very patient little boy!
Hope is still having very intense seizures, lasting up to 10 minutes. She has 7 - 15 per day, but she still has smiley comfortable periods in between and doesn't appear distressed at all. I can't sit her up very long because she has trouble with her secretions still, but she sure does smile when we put Mira on the floor in front of her to play.
Mira is having fun chewing on her big toes when she gets her socks off. Too cute!
6 comments:
I LOVE to see all those smiling faces!
Hugs Sally
we're glad 'all is well' and praying for a fun party for Brodie :)
Oh my...what a cutie pie!
-Elise
So glad that things seem to have stabilized some! I will pray that Brody's party works out!
Thanks for the great pictures! So cute that Hope enjoys Mira so much!
Ange
Hi to all. Love Mira enjoying her toes!! That is priceless. Glad you can enjoy special moments with Hope. You are always in our prayers.
BEAUTIFUL picture of you with Hopey, LOVE it. Mira's hair is the cutest with that tuft of curl on top - so glad to be able to keep up on your news, thanks for always posting, can't wait for our next coffee on your front porch. xo
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