I finally found a moment to update the blog. We got adventurous and took the girls out to one of Brodie's hockey games on the weekend. As you can see below, my two wonderful respite workers, were able to help me. It was fun and the girls did great.
Ashley went back to school yesterday, and did fairly well. She's still not having any noteworthy seizures, but she is getting a little more stiffness in her limbs. We have to use some pressure to bend her arms and legs, not quite as bad as before. Unfortunately, she is still having trouble with some vomitting. We think she starts coughing and that brings on the puke, so we're using Hope's pump to deliver formula very slowly, attempting to minimize the amount in her stomach at any time. Yesterday, we ran the pump too fast and she was puking again, which isn't fun because she turns a little blue and really struggles to breath. So, I'll adjust the rate again. She gets home from school in a few minutes and we'll start the pump at a slower rate. I'm not sending any food to school, as it would be best if she's not throwing up at school!
Brodie, Hope and Mira are doing very well. Mira loves bouncing in her exersaucer and really loves her jolly jumper!
2 comments:
That picture of Mira in her exersaucer is too cute! I would never have thought of only feeding Ashley at home so as to minimize the effects she may have at school - you're a smart cookie, Jolene!
Hugs to everyone (yes, X even to you!) Stay warm.
Judith
I'm so glad you got out to Brodie's game. What wonderful wonderful respite help!
Mira looks like she is loving life in the exersaucer and bumbo too!
Jenn
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