This is just a little update, for those who are wondering. Hope finished vomitting and started tolerating bits of water yesterday. Today we've increased her water and she is tolerating all her meds. She's started coughing up some green yucky stuff and she has not had a wet diaper since Wed. I'll be expecting a wet one tonight or I'll be worried.
She looks good though. Nice pink cheeks and a fairly strong, productive cough.
Brodie had his last hockey game today. Mira is having a nice nap and Ashley is enjoying the couch. It's a good day to relax.
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Ashley and Hope were born with Adenylosuccinate Lyase Deficiency. This metabolic disorder left them with a damaged brain resulting in seizures and profound psychomotor delay. They were not expected to live past infancy. Although they were palliative care, we kept them at home to love and hold. Ashley died on March 18th,2011 (6yrs old) and Hope followed her home on August 14th, 2011 (4yrs old). We now continue our journey as a 'Family of Four'.
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