Hmmm, I don't think Ashley is quite better. She has had some breathing issues today and is not looking very good. She also, hasn't had a wet diaper in 36 hours.
Hope puked a couple times today, but only because she's coughing so hard.
It's stay home, cancel appointments and manage necessities only for now.
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Ashley and Hope were born with Adenylosuccinate Lyase Deficiency. This metabolic disorder left them with a damaged brain resulting in seizures and profound psychomotor delay. They were not expected to live past infancy. Although they were palliative care, we kept them at home to love and hold. Ashley died on March 18th,2011 (6yrs old) and Hope followed her home on August 14th, 2011 (4yrs old). We now continue our journey as a 'Family of Four'.
1 comment:
we'll be praying - especially for Ashley. Hope you know that many people love you and care so much!
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